Yet another early Tuesday morning. Jasmine and David are off to another DC appointment but this time there will be no chemo involved. I only wish Jasmine was feeling better. She continues to fight this sinus drainage. Her breath smells awful. I don't know what more we can do for her when it comes to this. We can't give her anything for it and if we could we have to get authorization. Tylenol is something that has to be authorized even. I guess I will have to wait and see.
I got us up early today even though it wasn't really necessary to be up a half hour earlier. I was afraid that we would be late. This could not happen today because David was meeting his brother in law at a halfway point. Not to mention, we didn't want to make our lateness a habit.
I called David at lunch to get the update. He said that there was not much more we could do about her drainage than just use the vicks vapor rub. We were doing everything we could do and just had to let things take their course. The hand, feet, lip peeling were just part of the chemo. The drainage could be helped with steam vapor treatments or the rub. Everything was cut and dry. The only real concern for me was her count. It was at the lost it has been since we have started. This sends red flags up for me. We have to be extra careful about sickness around Jasmine as well as taking her out in public with numbers like that. This might mean some more days of quarantine. Well at least it would be on David's watch and not mine. I hate being indoors for too long and I know Jasmine does too. Maybe we could seek out early this weekend for a bit. Just to give her a break from these four walls. We shall see.
I have to get some wrapping paper today to wrap up Jasmine's Christmas gift. We got her a dollhouse on the black friday internet sale. I can't believe it's already here. I think she is going to love it. So excited. It would be even nicer if it was already put together but then she would know what it was. Darn! Well it just means we will not just be sitting around on Christmas. Maybe I should pull out the toolbox the night before.
Anyways, off to work today for a half day. David's going to try to fix the fence this afternoon for the dogs. This will definitely make them super happy, when its done of course.
This blog is about our story and journey down the road of our three year olds chemotherapy treatment. It will be 36 weeks and we know not what lies ahead.
About Me
- Leo8gstcancer
- Palmyra, VA, United States
- Jasmine is our special miracle baby. She was born 17 weeks early and stayed in the neonatal intensive care unit for three and half months. She came home with oxygen for a short time and was free and clear for a while. She started out with the usual babbling a couple of months behind the learning curve due to her developmental delay. At 16 months, we were told she needed hearing aides for her mild to moderate hearing loss. It was then we stopped hearing anything from her. At age 2, we found out she was diagnosed with Autism Spectrum Disorder (ASD). Jasmine is non verbal autistic. In the beginning of 2010, she had been hospitalized and diagnosed with viral pneumonia. One week later, she was admitted again for bacterial pneumonia. We spent nearly a month in the hospital overall. We found out she had cysts in her left lung. In September after much debate and continuous problems, the mass and all of her lower left lung lobe had been removed surgically. It was just not any mass but a cancerous one. Jasmine has Pleuropulmonary Blastoma (PPB) -Type II.
I still remember my doll house. Every little girl loves to play with one. Enjoy putting it together!!!
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