Last Tuesday we were supposed to head up to DC for our chemo follow up and blood work. They emailed David the evening before to let us know they had managed to get us in for our awaited MRI of the brain. Well, with the weather we and they were expecting, I figured there would be a cancellation or two. David and I just argued back and forth about whether to go or not. I thought it would be wise to cancel ahead and not play the guessing game. This was after all just a quick check up and blood work. The MRI was thrown in as after the fact. I had hoped that the weather would either pass us with out much doing but the forecast was so not telling. They were calling for ice and that's when I put my foot down. If this was her chemo treatment then I would say that we go up the night before and get a hotel or stay at Ronald McDonald. Anyways, after much aggravation and upset, David cancelled. There was no way we could have done so at 4:45 in the morning.
Anyways, Jasmine has been feeling pretty good. We kept her quarantined for the most part this week. We did very little outside. Many people are sick with the flu and I thought it would be best to keep her indoors until the 10 day Neulasta kicked in. She has expressed many times that she wanted to go out. She would take us to the door or bring shoes to us. We did go out once to get her blood work done and had dinner afterwards. It turned out to be a not so nice day. Jasmine fell asleep in the car and napped the whole way to the lab. When we got to the lab, we didn't have a write up to give to the tech. New laws in the state of Virginia that we could no longer use requests on file with PRN any longer. Now we would have to bring a new one each time. Go figure the one time we cancel and have to use the local lab for her ANC because we couldn't make the trip. We had never cancelled an appointment yet but now the theoretical (hence the reason for the PRN) was a reality. When she woke up during the fuss of trying to get a hold of a doctor or nurse from our team, she was have a bad meltdown. She had woke up to early from her nap and that can be seriously ugly. She had uncontrollable sobbing, screaming, and nearing hyperventilation. When it was all settled out, I took Jasmine back while David was finishing up on the phone with her doctor. I had never been back with Jasmine at the local lab. I knew they could not access her port and had to draw blood at a normal site. They knew her pretty well by now and tag teamed her. The only difference was she was very upset. With her free hand, Jasmine pounded it on the adjacent counter like an adult would slam their fist to emphasize their point. She kept on and then when it was all over she continued. When I told her it was all done and we could walk, she didn't walk. She stomped and marched out still crying. The tech said she was really mad today. I agreed but thought it was funny and cute for moment. She had never displayed such anger with this emphasize. She looked liked she should be giving an aerobic lesson with her knees coming up so high. HA! Its a site I will never forget.
We got her to stop crying, part way through our drive. We had to do two things, go to the dollar store for some carpet cleaner and then head off to dinner. I grabbed what I needed from the dollar store and headed to Pizza Hut.
When we got to Pizza Hut we got Jasmine milk for her drink. After much fussing and distraction from us, her meal came and she wanted to it as hot as it was. Of course, I stopped her because the last thing I wanted was to cause sores to start up her mouth. The healing factor is slowed tremendously due to the chemo. So I cut up her personal pizza a little more. In the meantime, she had been sucking down a milk. When she started to eat she realized she was all out and picked my hand up mid meal and put it on the milk. I grabbed it and realized it was empty. I tried to explain to her but she kept throwing my hand on the empty carton. She obviously wanted more but our waitress was no where to be found. I tried to give her some of my soda because I didn't want the girl to choke on all that she had eaten. She tried it and that was all she would have of that. She was so persistent about the milk until we flagged the waitress down and finally got her another. My kid REALLY likes milk, what can I say? I can at least say that she didn't give up on trying to communicate what she wanted.
After dinner we headed home, we had definitely made a day of it and fulfilled her need to go out. Next week we would have to go back to CNMC for her MRI and lab work.
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