About Me

Palmyra, VA, United States
Jasmine is our special miracle baby. She was born 17 weeks early and stayed in the neonatal intensive care unit for three and half months. She came home with oxygen for a short time and was free and clear for a while. She started out with the usual babbling a couple of months behind the learning curve due to her developmental delay. At 16 months, we were told she needed hearing aides for her mild to moderate hearing loss. It was then we stopped hearing anything from her. At age 2, we found out she was diagnosed with Autism Spectrum Disorder (ASD). Jasmine is non verbal autistic. In the beginning of 2010, she had been hospitalized and diagnosed with viral pneumonia. One week later, she was admitted again for bacterial pneumonia. We spent nearly a month in the hospital overall. We found out she had cysts in her left lung. In September after much debate and continuous problems, the mass and all of her lower left lung lobe had been removed surgically. It was just not any mass but a cancerous one. Jasmine has Pleuropulmonary Blastoma (PPB) -Type II.

Sunday, October 24, 2010

Week 2 closing

Jasmine has been getting around the clock medicine of all sorts.  Her mandatory antibiotics, thrush med, and tylenol have all been delivered via oral syringe. I have had to record each dose and time to keep track.  Its getting to be very confusing.   She hates me and knows what is coming everytime.  Sometimes she tries to let it run out her mouth or swipe it out.  We were fighting and still are.  Great news is she has signed for me to feed her when she saw me eat a bagel for dinner.  She brought me to the counter like she has continually tried to do before.  I knew she wanted to eat but her choices of what she prefers are so limited and not something her mouth could handle.  She pointed her finger to my bagel and then to her mouth.  Oh what the heck!  The worst that can happen is a heartbreaking repeat of yesterday.  PB and J it was but with a smear of PB and lot of jelly to ease it.  The first bite was not big but small.  She tested the waters a bit and decided to go in for another.  No wimpering or crying.  Could it be?  Was this really going to happen? SUCCESS...no wait.  She was so hungry she attmepted to eat the crust and began crying histerically..  Oh no! Work fast is all I could think.  Remove the crust from her mouth so the rest can go down.  I comforted her and told her she did a great job.  I told her how proud I was for her to have tried to eat even though I knew it wasn't easy.  She started crying when I got rid of the crust from the half of sandwich I made.  I worked quickly to make another and cut all the hard crust off.  Ding, Ding, Ding... we have a winner.  Two sandwiches later and she drank a whole 6 oz. of flavored water.   God, thank you.  What's our plan for week three, PB and J for breakfast, lunch and dinner.   With this small relief, I get ready to go to work tomorrow and hope for a restful nights sleep. Thank you, Thank you.

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