About Me

Palmyra, VA, United States
Jasmine is our special miracle baby. She was born 17 weeks early and stayed in the neonatal intensive care unit for three and half months. She came home with oxygen for a short time and was free and clear for a while. She started out with the usual babbling a couple of months behind the learning curve due to her developmental delay. At 16 months, we were told she needed hearing aides for her mild to moderate hearing loss. It was then we stopped hearing anything from her. At age 2, we found out she was diagnosed with Autism Spectrum Disorder (ASD). Jasmine is non verbal autistic. In the beginning of 2010, she had been hospitalized and diagnosed with viral pneumonia. One week later, she was admitted again for bacterial pneumonia. We spent nearly a month in the hospital overall. We found out she had cysts in her left lung. In September after much debate and continuous problems, the mass and all of her lower left lung lobe had been removed surgically. It was just not any mass but a cancerous one. Jasmine has Pleuropulmonary Blastoma (PPB) -Type II.

Friday, October 29, 2010

Week 3: Friday

 We thought it might be nice for her to have a good weekend before the week ahead.  She has been in good spirits all around.  I left work a little early today so we could go to Carter's Mountain for a little bit of everything.  Unfortunately, the weather was a lot colder and windy up there.  I don't think we were prepared for it that well.   I brought the camera with me in hopes of getting some good pics of the view and Jasmine in the pumpkin patch.  
It wasn't much of a pumpkin patch and I was kind of disappointed by it.  The hayride was empty and no one was purchasing tickets. Jasmine saw some other kids no older than 5 years.  She wasn't excited by the pumpkins in front of her but by the kids running around the patch.  When I thought she was heading for a nice looking pumpkin, she took a sharp left.  She was trying to follow the kids.  We followed her and tried to redirect her due to the fact they were already engaged in a game of chase.  When they came to a stop and sat on the pumpkins, Jasmine walked over and grabbed the younger girls arm.  She wanted social contact and nothing more than to play with them.  The girl just gave her a look and ignored her.  I told her that she was just trying to say hi.  She and her mom ignored us.  It was at that moment I felt sort of bad for Jasmine.  She's finally making social interaction with other kids but there was not much we could do to encourage it.  We had decided not to let her go to school with her immune system being down and worried about complications to hamper her treatment.   I know she misses it and wish she could attend. It's bad enough we have to worry about one of us being sick and bringing it home.  The last thing I want to think about is if other kids in the classroom will take the hand sanitizing seriously.  Not to mention, parents sending their kids to school when they are sick.  I dropped David off at work and now I think I'll join Jasmine in a nap that is in progress. 
Okay, so much for that.  It's amazing how loud the sound of the phone ringing in your sleep is.  Luckily my little sleeping beauty is not phased by the noise.  Ahhhh.....just like daddy.  I used to think me being a lite sleeper was a curse until recently.  I've found my curse to be my gift. My heighten awareness is what led us to discovering her earlier respiratory issues.  Now my long life skill was helping me with her around the clock "sickness".  
Flashback.  During her first admission for chemo, Jasmine had a close call.  It would have been something of freak accident if I had not woken up when I did.  She had two IV lines. One line was pigtailed to another which was smaller in thickness and length.  As she started to feel a little bit better she tossed and turned in her sleep to get comfortable.  The problem with this was she tangled herself in the lines.  I'd seen this many times before and dealt with it as best I could.  I would either unravel her extremities and hide/prop pillows on top of the line.  It kept her from rolling around and the line out of site.  Not this time.  I got up to check on her and the cord was around her neck not once but twice.  The smaller of course was wrapped around tightly and the second was looser and thicker. No one would have noticed until it was too late because I knew she was capable of doing this in a matter of minutes.  No one would be to blame making it something of a freak accident.  If you are a non believer in a higher power (GOD for us) after reading our story, I think you need help and hope that you find him. 
Today has been good and I hope tomorrow to be better.  She's eating well, and her sores are almost non existent.  Tomorrow the pirate princess will be out and about. Hope she keeps the hat on.  

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