Yesterday, was a good day but I proceed with caution. Jasmine had a good appointment. Her numbers looked good and she did well with her chemo. I'm sure there was the usual cries and tears but that's to be expected.
The headband with the flower was a success. She kept it on the whole day and never tried to take it off. Does she understand why? Does it make her feel pretty? Or, is it a mere comfort thing? Is it the gentle squeeze it gives her head? My husband laughs, and tells me I've been watching too much Temple Grandin. I've only seen the movie once, but I can understand the concept. What ever it may be that keeps it on her head, still makes me happy.
I was so relieved at lunch to hear that it had gone well. I went to Claire's at lunch to see if I could recreate her headband. They had so many choices and I found a variety of colored flowers that I could pin onto any headband I wanted. My purchase was not in vain. She was very interested when I layed it on the table. We even tried one on. Beautiful.
So David, comes home with another prescription for us to fill. Since he just got back 40 min before I did, we decided to make a family trip to the pharmacy. We knew we would have to wait, so we went across the street to a small local restaurant for dinner. Its a nice family type restaurant with a guy some nights making those cool twisty type balloons. You know, the ones that they shape into animals and things. Anyways, we sat there for a bit before the guy came to our table. Jasmine is not one for much direct social contact. You can not get in her face and expect some one on one, especially as a stranger. This guy didn't take it personal, thank God. He did his thing and she watched partly. When he was all done, she was very interested. As soon as he disappeared, we got the reaction that he was waiting for. She was so excited with it she waved it all around and nearly took out everything on the table. It was a huge heart shape with a red heart in the center. Along the sides of the heart were two bears hanging on. She kept squeezing them. What a way to top off the day. As she played with it, I overheard a conversation at another table diagonal to ours. There was a father and daughter about 4 or 5 years old. She told her dad, " That looks like a little boy with a flower on his head". He told her ,"I think that she is a little girl". I was looking down at my plate when she said it but I managed to work a smile while I ate. When I looked up, the dad looked like a deer in headlights. I could tell his mind was searching and hoping that I didn't hear. I brought my head up with the smile and looked directly at him. The dad didn't move but I looked away from him and let it be. I acknowledged that I had heard and was okay with it. Was I really or was I putting on the act again? I felt my eyes start to tear a bit but not enough for anyone to take notice of. She's was just a kid and she was merely doing what a kid does. They speak their mind with very little filter. I was okay with it but it just triggered a quick sad thought. I just let it go.
Now we are just taking a look at the ToyRUs Christmas catalog that came in the mail. HA! She's never taken a liking to things like that. She's been laying on the floor staring and turning pages. She's learning the ways and getting sucked into the ads. I knew it wouldn't be long. She may be autistic but she's just like any other kid. She is expressing excitement to somethings more than others.
The house is a mess but its a good sign that she's been busy. I can feel the energy again. This calls for a DD donut for Jasmine and a french vanilla coffee for mommy. Daddy's catching up on some ZZZZ but I'll grab him a donut. ;)
This blog is about our story and journey down the road of our three year olds chemotherapy treatment. It will be 36 weeks and we know not what lies ahead.
About Me
- Leo8gstcancer
- Palmyra, VA, United States
- Jasmine is our special miracle baby. She was born 17 weeks early and stayed in the neonatal intensive care unit for three and half months. She came home with oxygen for a short time and was free and clear for a while. She started out with the usual babbling a couple of months behind the learning curve due to her developmental delay. At 16 months, we were told she needed hearing aides for her mild to moderate hearing loss. It was then we stopped hearing anything from her. At age 2, we found out she was diagnosed with Autism Spectrum Disorder (ASD). Jasmine is non verbal autistic. In the beginning of 2010, she had been hospitalized and diagnosed with viral pneumonia. One week later, she was admitted again for bacterial pneumonia. We spent nearly a month in the hospital overall. We found out she had cysts in her left lung. In September after much debate and continuous problems, the mass and all of her lower left lung lobe had been removed surgically. It was just not any mass but a cancerous one. Jasmine has Pleuropulmonary Blastoma (PPB) -Type II.
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