I started out the day pretty early. Jasmine was up and thrashing around the bed. It was cool because she had nothing but smiles. I don't mind seeing an eye looking right into mine when its accompanied by a playful smile. As I got up my back screamed, "this bed is not made for 3". She led me by the hand to the living room where I began to notice just how cold it must have been. Her extremities would freeze in no time. I put on her toons for the morning and searched for a jacket she could use as a robe. I found her slipper boots and put them on. She looked like she was getting ready to go out. I skipped out on the hat and put on a jacket with a hoodie. We had to do a couple of things before we headed off for some trick or treating.
After breakfast we headed off to walmart for some quick necessities for our trip and post trip. We got what we needed and I promised her we would play outside for a bit when we got back. When we got home I unloaded the car and realized I had not given her the weekend mandatory medication. Great! What was I thinking? I dropped everything to make sure she got it before it slipped my mind again.
We played outside like I said we would. We flew her kite for a little and played with bubbles. She helped me keep the kite in the air while I ran for take off. She cheered me on when we got it up and going. We let the wind blow all the bubbles from the wand. She was even more excited when that happened. After taking turns for a while, I decided we needed to go in and have lunch. She wasn't happy about going in but I told her we were having chicken nuggets. When I we washed our hands and I pulled out the bag, she understood. She was eager to help in the process of punching the numbers in on the microwave. Not long after we had lunch and I threw dinner in the oven for David, I realized we had one more thing to do today. I had to run our trash to the dump. Woo hoo! After dinner was out of the oven, I loaded the car up with recyclables and trash. I made it back in 30 min. Next I had to get Jasmine changed in her costume. It wasn't easy because the sleep was about to set in for her. It was about time for her nap.
Surprisingly enough she was awake when I got back. David and I changed her and then me and Jasmine rushed out. We were behind schedule. The Halloween festivities started at 4pm and I told my sister I would meet her then. It was more like 4:30 when we got there. Jasmine had fallen asleep in the car as I suspected she would. When I got to the mall there was barely any parking left. This place was going to be packed. So much for low key Halloween. She was not so happy at first but livened up when my sister took her out of the stroller. This pirate was not willing to wear any hat of any kind. Good thing I brought the headbands. She was fine with that but it unfortunately did not go with the pirate theme. Oh well. We made our rounds about the mall. The candy was given out scarcely, but we managed to get the idea. Jasmine accepted any candy given to her and she dumped it in her bucket. When she was given the opportunity to grab she went in and grabbed one. She was a little more particular when it came to picking. A silver wrapped Hersey bar or a gold one,when those were the only choices. HMMMM? Most kids would pick a certain type of candy but my kid was worried about the color of the same candy. Love it. It just makes me smile. She was definitely a little devil this afternoon than a pirate. I knew she was tired still so I helped her out by carrying her for bit. When she walked for a while and she got tired again, my sister and I decided to put her back in the stroller. She fussed and I reached out to put her in and she clung on to me. I picked her up all the way and set her on my hip. She was grinning from ear to ear. Go figure....I got played. I didn't mind carrying her around but Lord knows my back did. I'd endure it just to make this a memorable day for her.
It was a short event. It wasn't picture perfect but it was worth it.
Now I think its time for some advil for mommy, some antibiotics for Jasmine and some vanilla ice cream for the both us. Bedtime will be early tonight. ZZZZZZ :)
This blog is about our story and journey down the road of our three year olds chemotherapy treatment. It will be 36 weeks and we know not what lies ahead.
About Me
- Leo8gstcancer
- Palmyra, VA, United States
- Jasmine is our special miracle baby. She was born 17 weeks early and stayed in the neonatal intensive care unit for three and half months. She came home with oxygen for a short time and was free and clear for a while. She started out with the usual babbling a couple of months behind the learning curve due to her developmental delay. At 16 months, we were told she needed hearing aides for her mild to moderate hearing loss. It was then we stopped hearing anything from her. At age 2, we found out she was diagnosed with Autism Spectrum Disorder (ASD). Jasmine is non verbal autistic. In the beginning of 2010, she had been hospitalized and diagnosed with viral pneumonia. One week later, she was admitted again for bacterial pneumonia. We spent nearly a month in the hospital overall. We found out she had cysts in her left lung. In September after much debate and continuous problems, the mass and all of her lower left lung lobe had been removed surgically. It was just not any mass but a cancerous one. Jasmine has Pleuropulmonary Blastoma (PPB) -Type II.
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