About Me

Palmyra, VA, United States
Jasmine is our special miracle baby. She was born 17 weeks early and stayed in the neonatal intensive care unit for three and half months. She came home with oxygen for a short time and was free and clear for a while. She started out with the usual babbling a couple of months behind the learning curve due to her developmental delay. At 16 months, we were told she needed hearing aides for her mild to moderate hearing loss. It was then we stopped hearing anything from her. At age 2, we found out she was diagnosed with Autism Spectrum Disorder (ASD). Jasmine is non verbal autistic. In the beginning of 2010, she had been hospitalized and diagnosed with viral pneumonia. One week later, she was admitted again for bacterial pneumonia. We spent nearly a month in the hospital overall. We found out she had cysts in her left lung. In September after much debate and continuous problems, the mass and all of her lower left lung lobe had been removed surgically. It was just not any mass but a cancerous one. Jasmine has Pleuropulmonary Blastoma (PPB) -Type II.

Sunday, October 31, 2010

Week 4: Sunday

Today we just decided to get up late.  It was a late start to the day but we got much needed sleep. I must of pulled a muscle in my back because it was still hurting.  Jasmine has been so loving lately.  She's a different kid in so many ways.  After doing much of nothing and eating what little candy Jasmine got from the day before, I decided to get her a donut.  I'm kind of glad she doesn't really like candy.  I don't know how long that will last but take it as a blessing for now.  I dressed her up and put on her black headband with a orange flower.  Off we all went to DD before David had to head to work.  She knew what we were there for after I ordered a sprinkled donut.  She saw the box and her eyes lite up.  She was eager to help carry it.  We sat down for a minute and enjoyed a doughnut each.  This would be the last sugary item in her diet til late tomorrow.  We were going in for a couple of scans at a different hospital in DC.  Tuesday morning we would begin her chemo.  
When we got home, David took off and I started up on some house chores.  I finished up some of the dishes left from our early lunch/dinner.  I started to fold the laundry David started.  There was still laundry to be washed yet and the bathroom to be cleaned.  I hate leaving a dirty house to come back to. I wanted everything to be clean so that we would have less to worry about.  I compiled a list of things to be done and things to pack.  It just seems like there isn't enough time when you need it.  Her I am blogging and I'm watching Jasmine run off with our empty hamper full of toys now.  What a beautiful sight.  So nice of her to pick up while I take a break.  
Well, tomorrow will mark the beginning of course #2 in Jasmine's treatment.  I am trying to not think about what is ahead.  I am merely focusing on what we need to do to function.  The many things I must remember.  Meds, addresses, packed bags, car essentials for sickness,  drinks,  and snacks.  These were just a few of the things.  Car floor lined with shower liner, DVD's for the ride, barf bags, maps, tom tom, extra clothes, paper towels, clorox wipes,....etc...All car stuff checked.  I'm sure this will all become second nature at some point.  
I'm not looking forward to the drive tomorrow.  We will be leaving a little later and hope the traffic is not bad.  I hate the constant barking me and David do in the car.  Stress and anxiety just buildup.  I am going to try to make a conscience effort to not do that. At least Jasmine will be distracted by the DVD player this time.  I can only hope for things to be better this time around.  
Posted by at

1 comment:

  1. AnonymousNovember 25, 2022 at 11:00 AM

    Hello dear..how is jasmine now?
    My niece jasveen is also diagnosed with PPB type 2.earlier reports of biopsy showed ewings sarcoma but reports of tumor removed THROUGH SURGERY confirmed PPB TYPE 2

    ReplyDelete

Subscribe to: Post Comments (Atom)