About Me

Palmyra, VA, United States
Jasmine is our special miracle baby. She was born 17 weeks early and stayed in the neonatal intensive care unit for three and half months. She came home with oxygen for a short time and was free and clear for a while. She started out with the usual babbling a couple of months behind the learning curve due to her developmental delay. At 16 months, we were told she needed hearing aides for her mild to moderate hearing loss. It was then we stopped hearing anything from her. At age 2, we found out she was diagnosed with Autism Spectrum Disorder (ASD). Jasmine is non verbal autistic. In the beginning of 2010, she had been hospitalized and diagnosed with viral pneumonia. One week later, she was admitted again for bacterial pneumonia. We spent nearly a month in the hospital overall. We found out she had cysts in her left lung. In September after much debate and continuous problems, the mass and all of her lower left lung lobe had been removed surgically. It was just not any mass but a cancerous one. Jasmine has Pleuropulmonary Blastoma (PPB) -Type II.

Saturday, November 20, 2010

Week 6: Saturday

Saturday
So much was accomplished today.  I started the day of with getting the dogs ready for their vet appointments.  Jasmine was up immediately after I got out of the bed, so I didn't get to shower right away.  She dragged me to the living room and turned on the tv.  She insisted that we sit in the recliner to watch the tube together.  We did for a few minutes and then she was off.  She wanted breakfast next.  Her gesture to turn on the microwave was a clear sign of her want.  I told her to hang on and I decided to do things backwards for my morning plans.  I made her breakfast and got my coffee started.  When she was done eating I headed for the shower and told David to get ready because I was getting ready to leave in 10min.  I showered dressed and started the car.  I got the dogs on their leashes and we were ready. I told David that this was his final warning and I would be gone.  He got up and dragged himself to the kitchen.  I felt bad I had to interrupt his sleep.  He had only been sleeping for 4 hours but he did volunteer to help.  He looked tired. This was a bad idea.
I went to the vets office and then went to get their nails trimmed.  I killed two birds with one stone.  It wasn't very often that I got to do those things without Jasmine in the mix.  I called David and he said he was getting everything packed in the car to go to the dump.  Yes we deliver our own trash to the dump.  Its just cheaper and never adds up to be as much as it would be to have the service.  The dump was only 10 min away.  
When I got home, no one was there. I decided to take advantage of the free moment and vacuum like crazy.  The dogs were tired from their excitement with our trip and they were calm.  I got a lot done without anyone here.  David pulled in just as I finished up the last room. I opened the door and could hear Jasmine crying.  She was fussing for a bit which was normal.  It always starts when we literally hit the driveway. Weird.  David distracted her with the "Oh there's mommy" line. She reached out for me and I picked her up.  She stopped crying but I had to give her the super excited happy voice.  The smile came back and that was all she wrote.  We went inside and we talked for a bit.  David said he had gotten a card from people he worked with.  Everyone had chipped in and got us a gift card.  Wow!  I told him to hold on to it and stash it until the first of the year unless something emergent happened.  We could use it to help pay for the hospital bills that would arrive shortly after the new year began.  Our new plan would begin then and we did what we could to try to cover the family. 
After I finished making dinner and David ate, he went back to sleep.  He said he felt tired.  I never heard him tell me wake him up at a particular time.  At the moment, I was more concerned with what Jasmine could do to keep busy while I finished cleaning.  I broke out her cardboard playhouse.  It was something I folded up and put away to help rotate her toys and stuff. I brought her to her room where I set it up and her eyes lit up.  It had been awhile since she had played with it.  It kept her entertained for hours.  I was able to clean the bathroom and mop the floors while intermittently joining her to play.  I washed my hands of course between before play times.  I went in and out of the playhouse at her request.  Sometimes we would switch places and one person would play peek a boo from outside of the house. She was nothing but smiles.  
Then my sister called and said she was free for a while.  She said she would be by to make some cookies with us.  I knew which ones she wanted to make.  The Rainy Day Cookies.  They were the only cookies we ever made from scratch as kids.  They were the best to us and brought back so many memories.  My mom had bought the book brand new out side of central park on 5 avenue.  We didn't have much but it was a deal. Two books for a special price.  This "Wonderful Rainy Week" book was one of them.  This book was the prize of the two.  Now Jasmine would get to enjoy the book as well.  This was the first thing we would do from it.  I kind of felt like the makings of the YaYa Sisterhood.
When the door bell rang, I wondered who it would be.  It was my sister and I couldn't believe the time.  I spaced the time and Jasmine let her in.  I had just finished cleaning and now we were going to make cookies. Only one problem, I forgot about David.  It was 4:15pm.  He had to be at work at 4:30.  I barged into the bedroom with flour covered hands and told him he was going to be late.  He woke up out of a deep sleep.  I could tell he was still processing what I was saying.  I ran out and washed my hands. I grabbed his work clothes together and packed his lunch.  I dropped his shoes in front of chair and said he could still make it if he hurried.  Okay, I wasn't feeling very good about that idea either because I knew he was still tired.   What a mess. I forgot about the time.  Once he left we picked up right where we left off. 
Jasmine had a great time making a mess. She's definitely a good cupcake helper but makes more of a mess with the cookie stuff. So much for a clean house. I'm glad my sister was there to help alleviate constant destruction of the rolled out dough.  I guess she saw it as playdoh and wanted to rip it apart.  We continued to make them quickly and get them into the oven before she got a hold of them.  When they were done she enjoyed the hard work.  They were just as good as we remembered.  Jasmine like the fish shaped ones. I colored them in like Nemo.  After some coffee we, said our goodbyes and Jasmine was trying to stall the event.  She grabbed my sisters hand and tried to put her in the playhouse (which had been relocated to the living room).  It didn't happen and so she threw a fit.  I brought her to the door to say goodbye and she pouted with tears in her eyes.  
As I'm typing this, Jasmine has quickly played lookout while I've been typing.  She thinks I can't see her from the corner of my eye.  She just reached off the cookie rack and grabbed a Nemo very quietly. She's taken a bite from one and put him back on the rack.  She just hopped away.  Okay, now she's back and tried to do the same thing but gave herself up.  She dropped the cookie on the floor. Yes, she has the look of guilt. She won't look at me but is staring at the cookie in shock.  If she could talk, I'm sure I would be hearing excuses.  Her body language says it all.  I throw it away and give her another one this time on her place mat.  The smile returns at 100%.  
Almost time for her medicine and to wrap it up for the evening.  Tomorrow will be busy as well, but not as much as today. 
I have so much to be thankful for today.  For one the gift from David's coworkers. Then there is the help David gave me today and the visit from my sister.  Now I have some delicious cookies for dinner.  :)

1 comment:

  1. Ok can you please post the recipe for the 'Rainy Day Cookie'. I love all the action that happened today. Your sister must have felt bad leaving, seeing Jasmine get so teary eyed. The cookies must have been good if it turned Jasmine into a cookie monster thief, lol. I could just see her little face eyeing those cookies. Did David get to work on time?

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