Week 6: Sunday

So let me recap what has been happening. 
Friday evening, Jasmine developed a low grade fever that turned into a full fledged fever.  I called CNMC about it and followed the plan once again.  This time they advised me to go to the local ER.  I scrambled around to get her stuff together and dressed. I put her cream on her port because I knew they would have to access it for blood and IV fluids.  Off we went, and arrived at the ER by 11 pm.  They must have received a call from CNMC because at this point they were aware of our arrival at registration.  The triage nurse brought us back and took her vitals.   Her fever had dropped a bit again.  It felt like a repeat of tuesday evening or maybe it was wednesday evening.  I can't tell anymore without looking at it in our notebook of current events, meds, and temps. All of it was on my backpack which was not easily accessible with Jasmine clinging to me, and I clinging to my purse and her belongings. 
Once, I was back in the ER I gave the resident our letter stating all about us and what needed to be done. She and all the ER staff were great.  They kept us isolated from everyone in the waiting room and all those in the ER.  I tried to stay with it because I had already been sleep deprived and now I was in for a long evening.  After Jasmine relaxed a little more and went to sleep, I tried to explain to the next person our story and what brought us to the ER.  The resident came in and told us that her counts come back very low.  She said the plan would be for her to get fluids and be admitted.  It was probably 5:30 or 6 by the time we made it up to the floor to be admitted.  They had been out of beds for some time and told me when one did become available they would let us know.  Part of the delay had to do with getting a private room (for isolation) amongst the few beds that would open. I was trying to stay awake for most of that time but was fighting sleep in a table chair. 
Once we got moved upstairs, they mentioned that we would have to be in the PICU because it would allow two things, isolation and close monitoring.  I knew they had a flat bed in those rooms.  Yippie!  Never thought I would say that.  The chair had done a job on me and my back.  When we settled in there, I immediately laid down and got 2 hours sleep.  Wow, I felt much better already.  I got up and noticed that shift change had happened and  we had a familiar nurse.  She remembered us and asked how Jasmine was doing.  I had some peace of mind when I knew she would be our nurse.  I asked her if I could go for 5 min and use the restroom and grab coffee. She said she would be with Jasmine and watch her.  I hurried and did both in record time 7 min (elevator time included). She was still in the room and Jasmine up so I turned on the tv. I noticed she was smiling again.  Once again she refused to eat or drink. By late morning, I could tell she was feeling a little more energetic.  By the time the oncologist came in to talk to me, I was more alert.  She introduced herself and told me she was new to the hospital.  I was relieved it was not the oncologist we had met some months ago.  I was still guarded though.  She explained to me that her counts were even lower than yesterday.  She was in need of platelets and blood.  We could wait until the next day but she was sure her counts would not make the cut.  I agreed.  I knew Jasmine needed a boost.  We decided to proceed with this and see if we could get her back up and going for her next treatment.  She was really nice and proceeded with caution.  I was not excited about her being there until Monday but I knew that our oncologist would be in the DC office then and the one at UVA.  I had to be in touch with ours before theirs got a hold of us.  I would opt for Jasmine to be transferred in an instant if I knew she would have anything to do with Jasmine's treatment. This was my main problem with this hospital, this one person.  
David came to relieve me and brought me dinner.  I explained all that had happened and what was going to happen next.  After I eat dinner, I left and headed home.  Once I was home I took a much needed shower and laid down to watch some tube.  David said Jasmine would not stop crying and seemed tired. I knew she would be since she didn't nap.  David sent me a picture message of Jasmine finally asleep.  After talking to him a bit more, I decided I should do the same as Jasmine.  
This morning (Sunday), I feel better.  With nearly 12 hours sleep under my belt, I needed to get up a new game plan.  I needed to call David and see how Jasmine was doing.  Jasmine must be feeling much better because she was standing in her crib and wanting to get out.  Only problem being, we still didn't know what her counts were. We would not be released from the hospital with her counts increased even until we received her results from the cultures.  Her cultures would not be done until Sunday evening/Monday early morning.  At this point I want nothing more than for Jasmine to be better and for her to be out of this facility.  I am so fearful that the evil oncologist whom we met a few months ago would try to alter Jasmine's treatment or even tamper with the plan CNMC had come up with for us. For now , I need to finish up the laundry and pack up my stuff for work tomorrow.  I need to make David's and my overnight back complete again for the "just in case" trip.  Much to do, so little time.  I keep praying that all will go smoothly and there will be no hiccups in this current event.