This week has been pretty uneventful, which is a blessing. There is lots to be done but its not for the holiday coming up. It's more to avoid the holiday craziness. Jasmine has been more like herself since Tuesday (her most recent treatment). She is eating and drinking a lot more. Her counts have increased but her body gets tired easily. Lord knows, when she gets tired, she gets very irritable. We even took her out for a bit. We took her to a cool toy store that sells your classic toys that Toys R Us doesn't carry. She had a great time playing with a lot of the display tables and demo toys. She even attempted to crack open the plastic on some and tear the rest of a box from another. Where were these skills when it was time for her birthday? Here we were trying to get her to do just that and her she was doing it. She definitely has progressed. We even took her to Barnes and Noble to preview some new books for Christmas. She had such a good time she insisted on handing off the ones she was fond of. As they began to collect I slowly put them back in there place. We found something she took a lot of interest in and something we thought would be helpful in her development skills. It was a puzzle board with door latches, hooks, sliding locks, buckle locks, chain locks. She was content and tired so we headed home after some much needed coffee.
Jasmine went in for her ANC count check yesterday in preparation for her long treatment next week. David came to my job at lunch so that we could check out another toy store similar to the one in Richmond. We were trying to get ideas for Christmas. The kitchen I bought her for her birthday didn't survive and wasn't durable enough. This time we would be ready to look harder for the right make. It wouldn't be another kitchen because I was determined to repair the damage on the one she presently had. It wouldn't be as pretty as it was but it would be functional again.
Tonight I have washed the dogs and am getting them ready for their vet appointment tomorrow. They have been in need of a bath. I forget how much they weigh until I have to lift them into the tub. Jasmine has gotten a kick out of petting them. I personally am not happy with this gesture. The dogs are shedding wet hair and its all over her hands. Oh yeah, I forgot to mention she's eating PB and J. GROSS! The dogs have jelly and Jasmine has hairy hands. Time for them to head outside for a while. At least dinner has become easier to figure out. I lay out the many (not really) options that Jasmine has left us to pick from. PB and J, frozen pizza, or chicken nuggets were tonight's menu. I wrote it out on the board and lied out the options on the counter. She knew the drill. She picked PB and J. I love it! I thought it would be the chicken nuggets again. For lunch she kind of helped herself as I unloaded a few grocery items into the freezer. She picked the bag out of the freezer and tried to carry it out. We those in bulk because we know it will be eaten at least 4 times a week. She has a very select diet by choice of course. Then again, what 2 or 3 year old doesn't have a limited menu. Oh, I remember the days when we ate vegetables , pasta and meatballs, grilled chicken, even a hamburger and once a hot dog. Those memories were just that, memories. At least my girl, liked smoothies. I like the idea of her getting into those. Today I grabbed some smoothies for lunch. It was buy one get one free day. BONUS! I knew Jasmine would dig that one. She's always wanting mine. Today the world was hers with her 20oz smoothie (shared with daddy of course).
Much has to be done this weekend yet again. David told me he would jump in tomorrow and head to the dump with Jasmine while I went to the vets office. This would allow more time for me clean up the house and then attempt some crafting with her. I bought some googly eyes and Elmer's glue. I'm sure we can think of something fun to do for thanksgiving or Christmas. I bought some gingerbread cookie dough. Maybe we can make cookies and use our cutters. We'll see what energy and time will allow. :)
This blog is about our story and journey down the road of our three year olds chemotherapy treatment. It will be 36 weeks and we know not what lies ahead.
About Me
- Leo8gstcancer
- Palmyra, VA, United States
- Jasmine is our special miracle baby. She was born 17 weeks early and stayed in the neonatal intensive care unit for three and half months. She came home with oxygen for a short time and was free and clear for a while. She started out with the usual babbling a couple of months behind the learning curve due to her developmental delay. At 16 months, we were told she needed hearing aides for her mild to moderate hearing loss. It was then we stopped hearing anything from her. At age 2, we found out she was diagnosed with Autism Spectrum Disorder (ASD). Jasmine is non verbal autistic. In the beginning of 2010, she had been hospitalized and diagnosed with viral pneumonia. One week later, she was admitted again for bacterial pneumonia. We spent nearly a month in the hospital overall. We found out she had cysts in her left lung. In September after much debate and continuous problems, the mass and all of her lower left lung lobe had been removed surgically. It was just not any mass but a cancerous one. Jasmine has Pleuropulmonary Blastoma (PPB) -Type II.
No comments:
Post a Comment