About Me

Palmyra, VA, United States
Jasmine is our special miracle baby. She was born 17 weeks early and stayed in the neonatal intensive care unit for three and half months. She came home with oxygen for a short time and was free and clear for a while. She started out with the usual babbling a couple of months behind the learning curve due to her developmental delay. At 16 months, we were told she needed hearing aides for her mild to moderate hearing loss. It was then we stopped hearing anything from her. At age 2, we found out she was diagnosed with Autism Spectrum Disorder (ASD). Jasmine is non verbal autistic. In the beginning of 2010, she had been hospitalized and diagnosed with viral pneumonia. One week later, she was admitted again for bacterial pneumonia. We spent nearly a month in the hospital overall. We found out she had cysts in her left lung. In September after much debate and continuous problems, the mass and all of her lower left lung lobe had been removed surgically. It was just not any mass but a cancerous one. Jasmine has Pleuropulmonary Blastoma (PPB) -Type II.

Sunday, November 21, 2010

Week 7: Sunday

Well, its that time again.  Laundry is mostly done.  Just need to pack my bag and Jasmine's. Today has gone by too quickly.  After yesterday's cookie extravaganza, Jasmine passed out and went to sleep in a matter of 30 sec.  This has truly been a record.  She fell asleep with her fingers in her ears and hiding her face in the arm of the recliner.  She was avoiding a commercial she hated. By the time I looked up again, I was sure she was awake.  When I walked over, she was snoring into the cushion.  Priceless. 
Of course as she woke up today she was all smiles.  We did our usual routine.  I played in the playhouse with her for most of the morning.  This was going to be the new thing for the next week or so.  David was late to work yesterday but I wasn't going to let him be late again today.  I put a frozen pizza in for our lunch/his breakfast.  When it was out I sliced it up and Jasmine caught wind of it. She had just chosen to eat PB and J and I made two.  She didn't want the pizza but now she did. I would let her have a slice.  When she tried to shove a big piece her mouth and it didn't fit, she went ballistic.  I broke out the pizza cutter and cut her slice into smaller pieces.  She flipped out and had her first official tantrum.  This one was like no other.  Unbelievable.  It went on for about 5 min. Me and David just let her cry and get it out of her system.  She would look to us for a reaction and the minute we looked like we cared, she carried on again.  What an actress!?!  When she was done, she continued to eat her slice. 
This evening she was into everything as I began to prepare our bags.  I realized I had fed Jasmine but forgot myself.  I decided to make a grilled cheese.  I made 2 and let the first cool off.  While I let the other one cool I began to put things away and clean up.  When I looked over, I had 1 and 1/4 left.  As I was trying to take this all in, Jasmine popped up in front of me to take another bite.  Wow! Really?  I will never eat at a separate time again.  I will never leave my dinner unattended either. This girls appetite had no end.
To finish off the evening, I got Jasmine coloring and pasting.  I had wanted to do this earlier in the day but she was getting bored as the evening was tampering to an end.   She  was very interested in what we were doing and particularly like the googly eyes.  I was trying to make a turkey with the construction paper we had.  We colored and pasted together.  In the end, she was very happy with the result.  I figured we would leave it behind for one of the people who have been watching our dogs for us while we were gone.  I placed a bag of cookies that we made the day before with it.  It was kind of a thanksgiving treat to say thank you.  Its small but much love went into it.  
Tomorrow will mark another long treatment.  Thankfully the next treatment won't be until December.  Well I better be heading off to bed myself.  Sleeping beauty is already claimed most of the bed.  Good night.

1 comment:

  1. It's great that she has such a good appetite!!!

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