About Me

Palmyra, VA, United States
Jasmine is our special miracle baby. She was born 17 weeks early and stayed in the neonatal intensive care unit for three and half months. She came home with oxygen for a short time and was free and clear for a while. She started out with the usual babbling a couple of months behind the learning curve due to her developmental delay. At 16 months, we were told she needed hearing aides for her mild to moderate hearing loss. It was then we stopped hearing anything from her. At age 2, we found out she was diagnosed with Autism Spectrum Disorder (ASD). Jasmine is non verbal autistic. In the beginning of 2010, she had been hospitalized and diagnosed with viral pneumonia. One week later, she was admitted again for bacterial pneumonia. We spent nearly a month in the hospital overall. We found out she had cysts in her left lung. In September after much debate and continuous problems, the mass and all of her lower left lung lobe had been removed surgically. It was just not any mass but a cancerous one. Jasmine has Pleuropulmonary Blastoma (PPB) -Type II.

Tuesday, November 16, 2010

Week 6: Tuesday

Awesome!  I'm am so happy to hear that we are kind of over the hump of Jasmine's treatment.  No, its not the halfway mark but the pressure and stress will be somewhat lifted.  Jasmine's oncologists said that after next weeks long treatment we would not have to be back until December.  Yes the only scheduled treatments left were her long nasty treatments.  I wish it could be the other way around but you don't always get what you want.  Isn't that part of a song?  Anyways, this will definitely give Jasmine's body time to recoup as well as ours.  This lack of sleep is really starting to give me a headache, not to mention, make stupid decisions.  This morning I decided to get on the treadmill instead of going back to sleep.  I had an hour to kill but didn't use it wisely.  I made myself more tired. I know exercise is healthy but not getting enough sleep is not. 
The girl is a ball of fire this evening and I'm going to make this short.  She's beckoning for me in her own special way.  The house is full of Jasmine energy.  We are loving it.  Even if you are tired and frustrated, it brings a smile to your face just to see her move and play. 
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3 comments:

  1. AnonymousNovember 16, 2010 at 9:48 PM

    Rachel really, the treadmill??????? Girl you need your sleep, all of you do!! So happy to hear the house is filled with Jasmines energy. It is a blessing to hear she is doing much better. Enjoy!

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  2. AnonymousNovember 16, 2010 at 11:26 PM

    I am so happy to hear that Jasmine is feeling better. God is great!

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  3. PaulaNovember 17, 2010 at 7:48 AM

    Rachel, she looked so cute in her pink sweater and leggins and especially with that hat! I have really enjoyed my days with her and David :) She was giving away some smiles yesterday especially as we were leaving the hospital.

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